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rgrylls's Blogs in September 2007

Anna Grylls update Wednesday 10pm
We finally got a visit from the G.I. doctors today, they have Anna on a good plan to get her feeds slowly back up to where they need to be, hopefully by the end of the day tomorrow. Anna is off the clonidine now, so the only medications she’s on now are valium for stiffness,......Read More

Posted on: 2007-09-12 19:51:53 | Rating:

| Views: 587 | Comments: 4 | Tags: Anna Grylls

Anna Grylls update Thursday 11pm
Anna threw up again this evening. It seemed to happen when she was trying to empty her bowels. Praise God that we were right there to suction her mouth out. We sucked a little formula out of her trach but not much – her lungs sounded a little junky, but......Read More

Posted on: 2007-09-13 21:17:49 | Rating:

| Views: 650 | Comments: 5 | Tags: Anna Grylls

Anna Grylls update Friday midnight ish
Anna threw up again at 6am this morning. She was not a happy camper – neither was I. We’ve had a long day getting all kinds of doctors in to examine her. Half past midnight and we’re still going. There’s a real art to getting things to......Read More

Posted on: 2007-09-14 22:18:43 | Rating:

| Views: 599 | Comments: 3 | Tags: Anna Grylls

Anna Grylls update Saturday 11pm
Anna had a rough time last night and this morning, her heart rate went up into the 190s for a while last night, and she was very agitated. This morning she looked terrible, she had watery eyes, puffy cheeks and was sneezing and coughing, much worse than yesterday. She looked just......Read More

Posted on: 2007-09-15 20:23:16 | Rating:

| Views: 853 | Comments: 9 | Tags: Anna Grylls

Anna Grylls update Sunday 9pm
Anna didn’t feel well again today. She threw up at about 5 this morning, then again this afternoon at 1 and again around 3. She was fixing to throw up again at 6pm but I have now learned the early-warning signs and managed to head it off. What with the throw-up,......Read More

Posted on: 2007-09-16 18:11:46 | Rating:

| Views: 714 | Comments: 13 | Tags: Anna Grylls

Anna Grylls update Monday 10pm
Anna has a new cousin! Her Auntie Jochebed had a little baby girl this afternoon! Yup, it was a girl! A girl, not a boy! No other details yet, but mom and ?????? are doing just fine! PLEASE PRAY that ?????? gets a name!!!!! Anna’s......Read More

Posted on: 2007-09-17 19:37:27 | Rating:

| Views: 686 | Comments: 8 | Tags: Anna Grylls

Anna Grylls update Tuesday 10pm
We got the result of Anna’s vision test today – it came back normal! That means that the signals are getting from her eye, through the optic nerve and back to the area of the brain that deals with vision. What she does with the signals is anyone’s guess, but the......Read More

Posted on: 2007-09-18 19:55:12 | Rating:

| Views: 601 | Comments: 8 | Tags: Anna Grylls

Anna Grylls update Wednesday 10pm
Anna had another GREAT night’s sleep last night – 11pm until 9:30am, and again a good nap this afternoon. PRAISE GOD!! Any of you who have ever been up night after night with a newborn baby know the relief when they start sleeping through the night!! Now, when......Read More

Posted on: 2007-09-19 19:41:45 | Rating:

| Views: 567 | Comments: 6 | Tags: Anna Grylls

Anna Grylls update Thursday 10pm
Anna had ANOTHER great night’s sleep last night. Four in a row (I think)! PRAISE GOD!!!! She had a good day today. We got our portable feeding machine this afternoon, so we were able to go out - Anna had a walk around the park this evening! It did......Read More

Posted on: 2007-09-20 19:34:05 | Rating:

| Views: 585 | Comments: 3 | Tags: Anna Grylls

Anna Grylls update Saturday 10pm
We had a much better day today. Anna’s lungs are getting better, she still is quite gunky, but the gunk is getting less, and it’s getting clearer, less yellow. She is also doing fine on her feed through the GJ tube – it has been on full rate since this......Read More