Got some bad news from the Federal Goverment today – in a letter from Social Security.   Here’s how it started: “We are sorry to learn that... Read More
Posted by: rgrylls on 2007-10-01 19:28:23
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Today was a pretty rough day (for us, anyway, Anna seemed to be OK with it!).   Our nurse was sick last night and didn’t come, so I was up with Anna from midnight, through the night.... Read More
Posted by: rgrylls on 2007-10-02 19:58:52
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Today was a pretty rough day (for us, anyway, Anna seemed to be OK with it!).   Our nurse was sick last night and didn’t come, so I was up with Anna from midnight, through the night.... Read More
Posted by: rgrylls on 2007-10-02 19:58:54
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Today was a relatively quiet day.   That was just fine with me.   No doctors visits, no major emergencies, just a couple of therapy visits, and several wonderful... Read More
Posted by: rgrylls on 2007-10-03 18:52:48
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Today was another fairly quiet day, although Anna was stressed out a lot, storming and sweating.   She was hyperextending her left knee quite badly, and generally not doing so well. ... Read More
Posted by: rgrylls on 2007-10-04 19:34:58
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Anna had a GREAT day today.   She did REALLY well with her new trach!   She was quite a bit more relaxed! Which isn’t to say that she wasn’t stressed a whole lot... Read More
Posted by: rgrylls on 2007-10-06 17:55:29
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Anna had another GREAT DAY!   She slept really well, and each time she woke up she was relaxed, not storming!   PRAISE GOD!   She was wiggling a lot this evening too! We... Read More
Posted by: rgrylls on 2007-10-07 18:49:25
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We started the hyperbaric oxygen treatment today!   I posted four photos, click on “photos” above, then type in “Anna Grylls” and hit “search”, and... Read More
Posted by: rgrylls on 2007-10-08 21:01:36
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Today was a pretty long day.   Lael and Liz took Anna for her second day of hyperbaric treatment in Wauseon.   I think Liz had to leave her house before 5:30am and probably... Read More
Posted by: rgrylls on 2007-10-09 17:32:01
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We saw some more progress last night!   Now, this may not seem like much…   but last night when Anna was sleeping, several times she stretched while sleeping, repositioned... Read More
Posted by: rgrylls on 2007-10-10 19:57:30
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Anna didn’t have a real good day today.   She was very unsettled all day, storming, sweating and posturing.   It’s tough because we have very few ways of knowing... Read More
Posted by: rgrylls on 2007-10-11 20:46:15
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The picture top left is Lael and Anna this evening - it's been a long week!!!  We give thanks to God for Liz getting up so early and getting back so late every... Read More
Posted by: rgrylls on 2007-10-12 20:13:08
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For those of you coming across this blog and wondering what it’s about, it started in July when our 1-year-old daughter Anna drowned in a small pond in our backyard in Lima, Ohio.  ... Read More
Posted by: rgrylls on 2007-10-13 19:56:00
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We had a wonderful day today.   Is it just me, or are the services at True Word Tabernacle just getting better and better?! We appreciate everyone who has brought food to us these... Read More
Posted by: rgrylls on 2007-10-14 19:42:37
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Anna had a good night last night and a good day today.   She is sleeping very well at the moment, she usually goes down around 9pm, and sleeps for maybe 6 hours or so.   She then... Read More
Posted by: rgrylls on 2007-10-15 20:12:14
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Anna had a good day today, but this evening she was twitching in a way that made our nurse think that she might be having seizures.   We rebuked that in Jesus’ name.   PLEASE... Read More
Posted by: rgrylls on 2007-10-16 19:28:18
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We went over to St. Rita’s this afternoon, and Anna got measured for a chair.   It’ll take a few months to arrive, so Lord willing we’ll never need it!!!   She is... Read More
Posted by: rgrylls on 2007-10-17 19:07:43
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Today was a relatively quiet day.   Lael, Liz and Anna went to Wauseon, it rained, there were no bills in the mail, no phone calls from doctors, nurses, case managers…   Anna... Read More
Posted by: rgrylls on 2007-10-18 19:59:57
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If you haven’t read Sarah’s post, I recommend you click on: http://www.thoughts.com/sarah/blog/for-anna-grylls-19361/ We love to read all the comments and posts.  ... Read More
Posted by: rgrylls on 2007-10-20 21:52:15
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PLEASE PRAY - Anna's J-tube is plugged, we can't get it cleared out.  We may be heading down to Columbus... Thanks, Richard Read More
Posted by: rgrylls on 2007-10-21 17:35:07
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Anna’s J-tube (that's the feeding tube that her formula and drink go through) got blocked this evening, her medication just wasn’t dissolved well enough I guess, and got stuck.... Read More
Posted by: rgrylls on 2007-10-21 23:48:45
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Today was a more average day, Anna had her hyperbaric treatment, and was quite relaxed (by her standards). BUT, she has a fever (102F) and is starting to snot again – with green stuff... Read More
Posted by: rgrylls on 2007-10-23 19:04:35
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Anna’s secretions got better today – less yellow.   PRAISE GOD!   We went anyways to St. Rita’s this evening so they could get some of her secretions to take a... Read More
Posted by: rgrylls on 2007-10-24 20:02:52
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It was a looooooooong day yesterday…   Anna’s G-tube came out Thursday night about 9pm.   We put a piece of the tube into the hole in her stomach to keep it open.  ... Read More
Posted by: rgrylls on 2007-10-27 04:56:57
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Today was a quiet day.   Cut some grass, cleaned the cars, grocery shopping…   Anna had an OK day, she was quite snotty at times and not breathing that well, but she was fairly... Read More
Posted by: rgrylls on 2007-10-27 17:46:16
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Anna's trach culture came up positive for bacteria today, so she's going to be starting on antibiotics again tomorrow.  PLEASE PRAY that she would recover quickly! Also, PLEASE PRAY for... Read More
Posted by: rgrylls on 2007-10-28 18:44:40
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Bubba is feeling better!  He threw up through the night last night, but started feeling better this morning.  Again we thank God for Liz coming over to help out! Anna started on... Read More
Posted by: rgrylls on 2007-10-29 19:14:18
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