Last night at midnight I went down to the office/music room to play poker since I couldn't sleep.  Pain in right eye/forehead.  Took a Fiorcet and it wasn't doing the job.  Around 12:45a.m. it started again.  This is my second episode this week where all of the sudden I felt like I was runing a high fever, nauseaous, lightheadedness.  I left a note for my husband just to let him know to shut down the poker game when he woke up and that I was up late with pain.  I didn't tell him the rest until this afternoon, he said it explains the weird wording on my note, lol.  So I basically crawled up the steps to the kitchen, said goodnight to my daughter, who wanted to talk but I didn't want to tell her what was going on and then I crawled up the next set of steps to the second floor.  At the top when i stood up I thought I was going to pass out so I quickly got in to bed and figured if I passed out now it was no big deal, I was already laying down.  I had called the dr. earlier and have an appt. for next Wednesday and I'm about 99.9% sure he'll have no idea what to do with this.  About 1/2 hr later i feel asleep and woke around 6a.m. and when right back to sleep til noon.  I came down stairs as my husband and daughter were returning from a shopping excursion, good timing. 

Right now the eye/forehead pain is about a 6, the nerve pain on left side of neck down arm is about a 5 adn the rest of my neck hurts - 4.  My mid and lower back are about an 3-4.. (1-10 scale, 10 the worst). 

This life sucks, actually it's not even a life, it's an exhistence, barely.  I make no plans to do anything because I have no idead from day to day, hour to hour how I'm going to feel.  If I'm actually feeling well enough I'll take a chance and go somewhere with my husband, an errand, a meal out, just a short ride somewhere.  Since my injury 3+ yrs ago we've been to one wedding, local and that was it.  We did have reservation to go to Las Vegas for a wedding but wound up having to cancel it.  My pain management dr. gave me Fentanyl patches to try to see if I'm allergic to it.  If I wasn't then we finally found something to help plus I could have the rhizotomy.  I put a patch on and several hours laters I thought I was going to die, allergic reaction, hives, shortness of breath, etc.
We weren't going to try it before the trip but figured if it helped with the pain it would make the plane trip less painful and we might actually be able to have fun for a few days.  Of course not, I should have known better than to think something good could happen to me, that I might get a break somewhere in life.  I've been on the WebMD chronic pain boards and I read of all these people like me in chronic pain and they discuss the different treatments and drugs they do and I want to slap each one through the computer screen. Why, because I can't take any of the drugs that should help because I'm allergic to morphine, codeine, etc.  So basically I've been through surgery and two years post op pain without drugs, I'm out of patience and tolerance, now you know why.  The day is half over (I've been awake 3 hrs.) for most  people and I'm ready to take another pill for the headache and go back to sleep for another 12-24 hrs.  Nothing more to do than watch tv and veg. 

Hopefully soon I can get to the beginning of all this mess but for now, ouch!