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Well am sitting here really wana write something but dont know where to start.
My daughter has got heart block! It was diagnosed when i was 37 weeks pregnant, it came as a very big shock 2 me and my partner (Gordon) Their was alot of jargon floating around when we found out, which me and gordon didnt fully understand. we didnt no the extent of this, and was told that we would have 2 wait until our child was born. Katie was born 2 days later by a section and was alrite, she had 2 go 2 intensive care and for the 1st day needed support breathing, after that she came on leaps and bounds and we were told that they were not going 2 rush into anything and she would not need her pacemaker (choice of treatment) at that stage and could wait til she was a bit older, they were aiming for 4-6 years!
Katie is now 8 months and was taken into hospital 2 weeks ago, i started worrying about her as she jst wasnt herself, she was sleeping all the time, and off her food. she also had a high temperature. Adoc told me she had a throat infection and jst give her regular paracetamol (calpol) so we went away and that wat we did, but as the day grew on katie didnt seem 2 be gettin any better, i phoned adoc again for sum advise, i told them that i daughters heart rate had dropped to 40 and although yes she normally had a low heart rate (average 60-70) this was worrying me, along with other symptoms. we were told 2 bring her bk in, but upon the doctor seeing katie we were to take her 2 accident and emergency. After that everything went so fast nurses and doctors in a&e were very worried about her, we got taken up 2 the ward, where katie got numerous blood tests taken and a canular in her hand, it was horrible she was screaming and i felt terrible.
After numerous doctors came to see us the next morning we finally got 2 see katies heart specialist and after we talked about things, and he talked 2 katies other heart specialist from yorkhill we were sent home and told that she was not in heart failure which was a good sign, but would need 2 get a 24hour heart monitor put on. We left the hospital servral hours later with katies heart monitor, it was fairly compact therfore didnt disrupt her very much. Next day i took Katie back to the hospital at 4 for her monitor 2 be taken off and sent away for analysis, 4 hours later we were back at the hospital as katies heart rate had dropped again. It was the same night shift doctor as the previous night, and she told a nurse who was very concerned that katies heart rate was only 40 that it was alrite, she was in the other night and it went as low as 38. i was very mad and had 2 control myself not 2 say anything, i felt how dare she judge when my daughter should recieve treatment. i felt that night we werent taken seriously and i was very upset and myself and gordon are very anxious about katie's condition.
Katie went for an eco scan the next day with her specialist where we live and it was a conference call with the specialist in yorkhill, they told us that although katies heart rate had dropped and was slow, that the heart was stilling doing its job properly and still pumping vigorously enough. We were told 2 come bk in 2 weeks, which is now tomorrow and a decision will be made on whether katie can wait for her operation or whether she should have it now!
What do i want them 2 do or say?????
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Posted by Jenns on 2007-10-24 07:49:41 | Rating: | Views: 69
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If I were you I'd want them to say that my daughters heart rate was in normal range and that she's a healthy little girl! I'm outraged at how little concern these people seem to put on Katie. If it were their daughter they would be bending over backwards to get the medical attention she needed.
My heart goes out to you and Katie and Gordon. I hope that she doesn't need the surgery and everything is ok. Please keep us updated as to what happens with your angel.
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Posted by Whitters
on 2007-10-24 08:06:12
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I think I would feel better if they just did the surgery. it will put a load of relief on your mind. But that is just me I am not a DR. The DR. knows best you are in my prayers and I wish you the best. Give that little tyke a kiss and hug for me. Stay Safe and try not to worry so much (not that I can blame you I have children myself)
J
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Posted by Rainbow
on 2007-10-24 08:09:51
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Well really she has to have the surgery either way, it is jst a matter of when, i suppose my issue is just trien to come to terms with that and be strong 2 support my family!
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Posted by Jenns
on 2007-10-24 08:20:03
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It's tough, no one wants their children to have to have surgery. My thinking is if it has to be now then ok, you will be strong. When you feel like you don't have the strength take a look at Katie, give her a hug and know that her strength stems from you.
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Posted by Whitters
on 2007-10-24 08:43:45
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